Tag: Crohn's disease

Book Review: Gut Feelings by C. G. Moore

M.T.Wilson @ The Last Book on the Left4 Comments

Gut Feelings by C. G. Moore

Genre: Young Adult

Publishing Info: January 2021 by UCLan Publishing

Pages: 400

Star Rating: 5/5

Back Cover Summary:

At school, I learned that words,

More than weapons,

Could destroy bodies,

Could break hearts

More than fists or fury.

This is the story of Chris, what happened to him at age eleven and how that would change the rest of his life. A life-affirming and powerful coming of age verse novel that shines a light on chronic illness, who we are and how we live.

Gut Feelings is an own voices novel in verse based on the author’s own experiences of living with Familial adenomatous polyposis (FAP). FAP is an inherited disorder characterised by the rapid growth of small, pre-cancerous polyps in the large intestines.

I found reading this novel incredibly moving and cathartic as I recognised some of my own experiences of chronic illness reflected in the pages. Similarly to the narrator of the novel, Chris, I was diagnosed as chronically ill at a young age, when I was ten years old. There are so many parts of this book I could quote, but I chose just a few to include in this review that really resonated with me.

“This room is no place 
 For a child
 That wants to run and swim, 
 Bike his way 
 To the top of the hill. 
 I listen and obey
 As curtains close 
 Around me –
 Around my future.”

While the condition I have – Crohn’s disease – is a different condition to FAP, there is some overlap in symptoms and treatments as both affect the intestines. I could relate to the blood tests, the colonoscopies, the hospital visits, the surgery, the anxiety around having to rush to the toilet, of praying to make it through an exam, and issues of body image and scars. I could relate to the confusion and the fear of being faced with a diagnosis at such a young age.

Read More »

Living with Crohn’s Disease (Crohn’s and Colitis Awareness Week)

M.T.Wilson @ The Last Book on the Left8 Comments

This week is Crohn’s & Colitis Awareness Week so I’m going to be doing something a little different on my blog today. I don’t talk about personal things much on here, but I’m hoping by sharing my experiences of living with Crohn’s Disease it will help raise awareness.

There are a range of symptoms and not everyone’s experience of Crohn’s Disease is the same. This post will be explaining a bit about Crohn’s Disease and what my personal experience of the condition has been.

Most people I meet have never heard of Crohn’s Disease. According to Crohn’s & Colitis UK, it’s estimated that one in every 650 people in the UK are affected by Crohn’s Disease. But sadly it’s a misunderstood and often stigmatised condition.

Crohn’s Disease and Ulcerative Colitis are the two main forms of Inflammatory Bowel Disease (IBD). They are chronic conditions that can be managed through various treatment options, including medication and surgery.  

Crohn’s Disease causes inflammation of the digestive system or gut. Symptoms vary from person to person, but include diarrhoea, abdominal pain, nausea, vomiting, fatigue, mouth ulcers, weight loss, anaemia, joint pain, as well as wider health complications. I’ve experienced all of these symptoms at various points in the last 15 years. You can find more detailed information about Crohn’s Disease on the Crohn’s & Colitis UK website.

Management of diet is also important for coping with Crohn’s Disease day-to-day for many people, although the extent food affects people seems to vary, and everyone has different foods they can and cannot tolerate. I can’t eat any whole grains or oats at all. While there are some foods I can eat in moderation with careful planning, for example cheese and chocolate.

I was diagnosed with Crohn’s Disease at the age of 9 and to be honest, I don’t really remember a time when I wasn’t ill. People are diagnosed at all stages of life, some in childhood, some in their teens, some in early adulthood, some later in life.

The condition is life-long, although there can be periods of relative wellness interspersed with flare ups. For me it’s been an endless cycle. I’ll be very unwell, then have a few months or years of being fairly well, and then have another flare up, over and over again in a cycle. Stress can be a trigger for flares, which has happened to me a couple of times. It’s important to remember that Crohn’s Disease doesn’t go away during those ‘good’ periods. I still suffer from bad fatigue, still have to be careful to avoid trigger foods, and sometimes still get symptoms.

Read More »